ELSI Important Documents

• Position Statement of the International Genetic Epidemiology Society in response to "Request for Information (RFI):Proposed Policy for Sharing of Data obtained in NIH supported or conducted Genome-Wide Association Studies (GWAS)" (posted November 20, 2006)

• ELSI Charge

• IGES Resolution on Eugenics (January, 1999)

• IGES comments on OMB Circular A-110 (March 31, 1999)
  (regarding the proposal to extend the Freedom of Information Act (FOIA) to cover recipients of federally funded research grants)

• IGES Resolution Concerning Recent Allegations Against James V. Neel, Genetic Epidemiology 19:i-ii (2000)

• IGES: Commentary on "Darkness in El Dorado" by Patrick Tierney, Genetic Epidemiology 21:81-104 (2001)

ELSI Related Links

• World Health Organization (WHO) - Ethical, Legal and Social Implications of Human Genomics
• Center for Disease Control (CDC) - Ethical, Legal, and Social Issues (USA)
• Department of Energy - Ethical, Legal and Social Issues Resources (USA)
• National Institutes of Health - National Human Genome Research Institute - ELSI Research Program (USA)
• National Institute of Environmental Health Sciences - ELSI (USA)
• Biobank - Ethics and Governance (UK)
• Genethics.ca - The Genetics and Ethics Page (Canada)
• GENETHICS - Ethical Principles and the "New Genetics" (Australia)
• Geneforum (Informing Citizens for the Gene Age)
• HumGen: International Database on Legal, Social, Ethical Aspects of Human Genetics
• Center for Genetics and Society
• Genetic Alliance
• The Genetics and Public Policy Center

ELSI Committee Members