ELSI Important Documents

• Position Statement of the International Genetic Epidemiology Society in response to "Request for Information (RFI):Proposed Policy for Sharing of Data obtained in NIH supported or conducted Genome-Wide Association Studies (GWAS)" (posted 20NOV2006)

• ELSI Charge

• IGES Resolution on Eugenics (January, 1999)

• IGES comments on OMB Circular A-110 (March 31, 1999)
  (regarding the proposal to extend the Freedom of Information Act (FOIA) to cover recipients of federally funded research grants)

• IGES Resolution Concerning Recent Allegations Against James V. Neel, Genetic Epidemiology 19:i-ii (2000)

• IGES: Commentary on "Darkness in El Dorado" by Patrick Tierney, Genetic Epidemiology 21:81-104 (2001)

ELSI Related Links

World Health Organization (WHO) - Ethical, Legal and Social Implications of Human Genomics

Center for Disease Control (CDC) - Ethical, Legal, and Social Issues (USA)

Department of Energy – Ethical, Legal and Social Issues Resources (USA)

National Institutes of Health – National Human Genome Research Institute – ELSI Research Program (USA)

National Institute of Environmental Health Sciences – ELSI (USA)

Biobank – Ethics and Governance (UK)

Genethics.ca – The Genetics and Ethics Page (Canada)

GENETHICS – Ethical Principles and the "New Genetics" (Australia)

Geneforum (Informing Citizens for the Gene Age)

HumGen: International Database on Legal, Social, Ethical Aspects of Human Genetics

Center for Genetics and Society

Genetic Alliance

The Genetics and Public Policy Center

ELSI Committee Members (members wanted)